Personal & Hard

This is a very personal sensitive subject and I need to write about it. I can't hold it in anymore, I just need to write.

I have wrote about the disease that I have a lot in this blog but not recently..

The past few months I was getting migraines like crazy and they were horrible! I thought it was stress causing the migraines so my boss made me go to a doctor and he said the same thing I was stressing too much he gave me a shot and some anti-anxiety pills and sent me on my way..A few weeks later I was in the hospital for a week. My body just started shutting down. On the weekend I felt fine until Sunday I woke up with swollen glands my throat killed not like dry or scratchy just hurt and swollen, swollen hands and swollen feet. I was extremely sick my body hurt and I felt like throwing up all day late that night I got light headed and started getting another migraine so like I was told I took the anti-anxiety pill and went to bed. The next morning I woke up and got in the shower still swollen, sore, and just felt awful all the sudden my hands and arms went numb and heavy I couldn't lift them my heart went out of control beating so outrageously fast I couldn't breathe I stepped out of the shower and tried yelling for Kyle he ran in and grabbed me just as I started to pass out he laid me on my right side so my circulation was better and calmed my heart. Kyle wanted to go to the hospital right then but I told him no that I just needed to lay in bed and rest he hesitantly agreed and went to work. Calling me constantly throughout the day. When he got off work we went straight to the doctor as soon as I got there he check my heart looked at me and checked it again looked at me and asked if I had been running a marathon.. he then sent me to be admitted to the hospital as soon as I got in my room which was right down the hall I had three different people already doing tests hooking me up to multiple monitors including a heart monitor. The nurse asked me to change into the hospital gown so I did I got up and went into the bathroom changed and the heart monitor went crazy at the time I had no clue what the beeping was about as soon as I walked out of the bathroom three nurses, the ER doctor and the CEO of the hospital came bursting through the door with shock in there eyes like they were prepared to see me dead or something Kyle and I looked at each other confused the CEO slowly walked up to me and asked me to slowly sit on the bed while the ER doctor was checking me Kyle asked what was wrong and he said my heart beat was past 180 which is dangerous when I layed back down the lowest they could get it was 140 where my resting heart rate should be at 65! I was checked for multiple heart issue which was scary all I could think about was that I am only 25 and my heart is going crazy! every time I would sit up, stand up, or even talk my heart rate would go up.

After all the test came out negative they moved on to other tests about the third day my resting heart rate was at 120 and standing or sitting up it would go up to about 140 so some progress but still no answers they then decided I was bleeding eternally which I was loosing to much blood therefore making my heart over work. So a specialist came down and did a scope they found an old ulcer in my stomach but it was already healing. After surgery that night my blood dropped down to 20 which is low enough for a blood transfusion but I didn't want one they scare me..my blood should be at 40-45 meaning it wasn't the ulcer I was loosing blood from I'm sure it was some of it but not enough.

Two days later I was released they still didn't have any answers just guesses and I didn't want to be there anymore! For a week I didn't get any sleep heart monitors and an IV are annoying and very difficult to sleep with, drawing my blood every three hours around the clock for five days mean painful and extremely sore arms, and not being able to eat anything except chicken broth and juice for five days wasn't to great either!

I have been put on multiple medicine one being an iron pill to get my blood higher, it was working the first two weeks out of the hospital I had to go part time at work and have to take things easy which isn't an easy thing for me I have to get my blood checked once a week as well and it was going higher point by point and then... I started to get sleepy after doing little things and I woke up swollen and sore and sick all over again I shrugged it off and thought I am still recovering and then another week past and again woke up sick, swollen and sore and just felt awful later that day my chest started to get tight and my left arm went dead and my heart kept doing this thing like it was either missing a few beats or it was beating really fast and then one hard big beat and each time it would take my breath away. SO I decided to go back to the doctor this entire time this has all happened I have had the feeling it had to do with my endometriosis and finally I went in and got my blood drawn and it was low again...I was frustrated and upset the doctor came in and I just blurted out I think it has something to do with my endometriosis and he looked at me and said I think so to and we need to have a serious discussion about what is going on.

My doctor isn't very good at bedside manners he is blunt and to the point. He looked at me and said Lindy I have talked with your specialist and we feel this endometriosis is causing some serious issues with your health and frankly these issues are going to get worse to the point where it will be serious enough it will kill you..your only 25 and we can't keep enough blood in your body and your having serious heart issues and you need to get a hysterectomy as soon as you can because even with removing your uterus which is the source of your endometriosis it will still be in your body and we still won't be able to remove all of it and we are scared that it will or has caused some health problems that aren't reversible. Frankly this disease is slowly killing you...Uh what the hell do I say to that!? I know my endometriosis was serious and I know that in cases it can cause some serious issues, did I think it would have done that to me? Not really I mean if I didn't keep up on it and never did anything about it but I have done everything possible including a surgery a year. For it to still be getting worse and this bad this fast, no I didn't think it would be something that could freakin kill me and no I didn't ever think I would be in a doctors office being told that a disease was slowly killing me! I think my heart had completely stopped at that point. I was numb, I just kept listening to him answered a few questions and after left and just sat in my car for a few minutes before I realized I needed to start my car and drive home.

I was upset but I understand I really do I just feel like I have had faith even after everything we have gone through to try and get our own child but I still had faith that I would still get my own child and if I do this surgery it will show that I have lost faith. Every time we get close to doing invetro or finding a way to pay for invetro and adoption something comes up like this time, the week I was in the hospital I actually had an appointment with an invetro specialist.

I am frustrated and don't feel good I can't have fun and walk around a lot or have fun with my husband or nieces and nephew with out my heart going crazy and getting sick. It makes me mad! I am trying to stay strong my family has gone and is going through enough and I have put Kyle through enough the past 5 years its not fair to him that he doesn't get a child of his own because of me its not fair that he has had to work so hard to pay for many, many hospital and doctor bills.

Honestly, I feel like if I stay strong and don't show any emotion that everyone will take it as she is OK so we can be OK and not worry about it. So far its worked, I just don't know how long I can keep doing it. I have pictured, dreamed, and had faith that at the end of this long hard trial it would end like a fairy tale with a baby of our own, us holding our angel at the hospital looking back at the hell we had been through but it all being worth it because we finally had our baby.

And now that won't ever happen.